It can help control the side effects such

It is with deep sorrow that I have to inform you of news about your recently born child. As you know, you went to get a checkup on your baby to see if everything was running smoothly. Sadly, we found a genetic disease in Aaron. He has a disease called Epidermolysis bullosa or “EB”. Epidermolysis bullosa is a group of genetic case that causes the skin to be very fragile and to blister easily. Blisters and skin erosions systems in result to a small injury or friction, like rubbing or scratching. EB is a rare genetic disease that small children normally get. You will get the disease from ancestors or even straight from the parents. Hope isn’t lost because there are ways you can help treat this. We are here for you if you need any more support or information. If the lifestyle changes and home care can’t control the signs and symptoms of EB, treatments could include some medications, surgery, or even rehabilitation. EB often goes on despite treatment, sometimes causing serious damage.Once again, there is still hope and ways you can prevent death from occuring. Medications can help control the side effects such as itching and treat complications unless you have an allergy reaction. The doctor may suggest antibiotics if the wounds show signs of infection in a lot of areas. There are more ways such as therapy and surgery. The therapy treatments you could consider are Gene therapy, Bone marrow transplantation, Protein replacement therapies, and Cell-based therapies. The surgery you could consider are Widening the esophagus, Placing a feeding tube, Grafting skin, and Restoring mobility. Some of the symptoms are skin that blisters easily, blisters inside the mouth, blisters on the hands and soles of the feet, scarred skin, sometimes with small white spots called milia, thickened skin and nails. As you can see, there are a lot of different paths you could take and those paths are very reassuring.  For the age affect, it really just depends on the situation of the child and how serious it is. With Aaron specifically, he looks stronger and healthier than most so he may be different from most children with EB disease. The child might have some complications with knowledge in the future or growing rates. For the parents, the treatments do cost a decent amount of money and the child will need extra care. Since it is a genetic disorder, in the future there is a high possibility that more children will have this rare disease if your child lives longer than the expected rate. All the hard work you will do with this child will definitely pay off and Aaron will have a good life in your hands. For more information you can go to the sites listed below. I hope this has helped.


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